There are numerous organizations providing information and support regarding RSD, CRPS, and chronic pain conditions in general. Here are just a few:
Reflex Sympathetic Dystrophy Syndrome Association of America
PO Box 502
Milford, CT 06460
Tel: (203)877-3790
Fax: (203)882-8362
Tel: (877)662-7737
Email: info@rsds.org
American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
USA
Tel: (916)632-0922
Fax: (916)632-3208
Tel: (800)533-3231
Email: ACPA@pacbell.net
Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
American Pain Society
4700 West Lake Avenue
Glenview, IL 60025
Tel: (847)375-4715
Fax: (866)574-2654
Email: info@ampainsoc.org
Pain.com
c/o Dannemiller, Inc.
5711 Northwest Parkway
San Antonio, TX 78246
Tel: (210)641-8311
Fax: (210)641-8329
Email: editor@pain.com
American RSDHope
P.O. Box 875
Harrison, ME 04040-0875
USA
Tel: (207)583-4589
Fax: (207)583-4978
Email: rsdhope@roadrunner.com
International Association for the Study of Pain
IASP Secretariat
111 Queen Anne Ave N, Suite 501
Seattle, WA 98109-4955
Tel: (206)283-0311
Fax: (206)283-9403
Email: IASPdesk@iasp-pain.org
Vasculitis of the Central Nervous System
vasculitisoftheCNS@yahoogroups.com
Tel: (770)978-5636
Email: cnsvsurvivor@aol.com
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
P.A.R.C. Promoting Awareness of RSD/CRPS in Canada
PO Box 21026
St. Catharines
Ontario, L2M 7X2
Canada
Tel: 905-934-0261
Email: carlayoung74@hotmail.com
Irish Chronic Pain Association
Coleraine House, Coleraine St.
Dublin, 7
Ireland
Tel: +353 1 804 7567
Fax: +353 1 8047567
Email: info@chronicpain.ie
American Pain Foundation
201 North Charles Street
Suite 710
Baltimore, MD 21201-4111
Tel: (410)783-7292
Fax: (410)385-1832
Tel: (888)615-7246
Email: info@painfoundation.org